Two chemo treatments left in this round

momandandrew.jpgMarch 26: Mom only has two more chemo treatments of the gemcitabine in this clinical trial (March 28 and April 4).  And so far, from the perspective of someone who a) isn’t taking the treatments and b) doesn’t live with the person taking the treatments, the chemo seems to be going really well.  Mom gets pretty fatigued the week of the treatments, and she has some good drugs that help with the nausea.  I think she still doesn’t feel right in part because of the surgery and in part because of the extensive radiation she had last summer.
All that said, this round of chemo hasn’t hit her to hard.  She hasn’t lost her hair, and there haven’t been that many days that she has really felt rotten.  We’ve spent most Mondays together, usually shopping and/or spending time with “Dr. Andrew.”  So it’s been about as good of a round of chemo as we could have hoped for.
In other good news, a law was passed on Friday that requires insurance agencies to pay for clinical trials for cancer patients.  We’re looking at a couple clinical trials that Mom might try this summer, so this could be really important.  The American Cancer Society played a major role in promoting this legislation.

Governor Jim Doyle today signed Assembly Bill 617, the “Cancer Patient Protection Act,” legislation that will help ensure cancer patients can receive the treatment with the highest likelihood for success by requiring insurance companies to cover treatments associated with clinical trials.

“It is unconscionable that a cancer patient should have to pass up therapies that could significantly prolong or even save their life because their insurance company won’t pay,” Governor Doyle said.
“The Cancer Patient Protection Act will help make sure every treatment option is available to cancer patients, and I am pleased to sign it into law.”

Last year, more than 26,000 people in Wisconsin were diagnosed with cancer.  For those suffering from cancer, clinical trials offer some of the most cutting-edge treatments available.  But thousands of patients opt out of these treatments because their insurance requires them to pay out-of-pocket.  Many times these treatments are routine, like chemotherapy, which the insurance company would pay for if it wasn’t a clinical trial.

Assembly Bill 617 protects cancer patients from having to make treatment decisions with their pocketbook.  It guarantees clinical trial participants the same insurance coverage for their routine care through a clinical trial that would get if they chose a standard treatment.

Additionally, because this bill will make clinical trials a mainstream treatment option, it will encourage more people to participate in cancer research, which can ultimately save many more lives.

Governor Doyle thanked Representatives Scott Gunderson and Sheldon Wasserman, as well as Senators Cathy Stepp and Jon Erpenbach for their work on the bill.

Houston, we have movement!

andrewwithbooks.jpgMarch 26: Andrew is such a content baby…he hasn’t really seen the necessity in struggling to move about.  Looking at the toys he wants is almost as nice.  But in the last week or so, Andrew started to scooch around on the floor on his belly. His transmission system has only figured out the reverse gear, but it’s fun to watch him move up to a few feet backwards in his attempt to get a toy.
He lies on his tummy with his arms “airplaning” out to the side and then pushes up.  Since his feet are usually hovering above the ground, pushing up causes him to slip backwards a couple inches.  He is starting to figure out that he can move right or left by picking one of his hands up.  It’s a major focus of coordination to keep one hand holding himself up while the other moves to the side.
Pictures of Andrew from the last week are in the gallery.

Andrew’s favorite game these days is “empty out the box of books.”  He also enjoys its close companion, “empty out the box of toys.”  These games are followed in interest by the surefire “drop the toy off the high chair tray.”  He loves to be read to, and he knows how to turn pages (and as we discovered, rip the pages of non-board books).  Oh, and on Thursday, he started clapping his hands for the first time!  He likes the sound they make when they clap, and he watches them with rapt attention.
We’re going to Wichita in two weeks to see his great-grandparents and Granny Lu and Grandad and hopefully Ben and Melanie too.  We’re already excited!
It’s a time of major learning and growth in Andrew’s world.  He’s a wonder to watch.

Week of Celebrations

marettandkyle.jpgMarch 26: Late March is always a time for celebration in the Babler family.  The 19th is Michael’s birthday and the 25th is Joe’s birthday.  But this week we had loads to celebrate!  Kyle brought Maretta home for spring break on the 18th, and to our surprise and delight, they announced that they’re engaged!  Yay!  They’re looking at a wedding in two years when she graduates from St. Kate’s and he finishes his master’s at the U-Minnesota.  Joe has heard back affermatively from several colleges, and on Sunday the 19th, Mom and Dad renewed their wedding vows.  It was a wonderful day. Many pictures from the festivities are in the photo gallery.
Since Maretta was home for spring break, we got to see her several times over the last week, and we had some fun times together.  Mom’s birthday is on April 7, and then Maretta and Kyle are planning to come down for Easter weekend, so the festivities will continue into the next month.

Carpe Diem Party for Mom – Save the Date!

You’re invited! 
Memorial Day weekend marks the one year anniversary from my Mom’s cancer diagnosis.  We’ve had a trend of good news the last few months, and it is high time that we had a celebration.
My plan is to bring together many of the people who have and continue to care for, think of, and pray for Mom over the last year.  I’ve got to think that part of the reason she is doing so well is that she has such a wonderful community of people who love her and who are bolstering hope.

So let’s get together to celebrate Margot!

Date: Saturday, May 27 (Memorial day weekend)
Time: 11 am – 4 pm
Place: Token Creek Park, Shelter #5 (just north of Madison on Hwy 51)

For directions, click on the link below.
RSVP to adotzour@gmail.com or 608-223-9539..
Yay!  I love parties!
~Althea

The entrance to Token Creek Park is on Highway 51, one-half mile north of I-90/94.  It is on your right, just after the Pine Cone filling station. Shelter #5 is toward the back of the park.  Follow the road up the hill and keep your eye open for balloons!
A map is included below. If you have other questions, please give me a call.
token_creek_map.jpg

Happy St. Patrick’s Day!

StPatrick.jpgMarch 17: Andrew is so cute this morning in his outfit of green.  We took some photos of our little leprechaun, and before I dash off to work this morning, I thought I’d put them on the website so you can see him too

This week’s gallery update also includes photos of a gathering we had with some of Andrew’s friends on Monday.  It is so fun to watch him interact with other babies.
Have a lovely St. Patrick’s Day!
~Althea

Wee Bit O’ Irish
You’re the flash and sparkle in dark Irish eyes.
You’re the whimsey and charm of leprechaun guise.
You’re the treasured gold at the rainbow’s end.
You’re the beauty and mystery of emerald glens.
You’re the top o’ the mornin’ – my cup of tea.
You’re springtime adornin’…blessings on thee.

Continue reading “Happy St. Patrick’s Day!”

Working on pushing up

March 12: Andrew is so much fun!!  He’s laughing and reaching and is engaging more and more with the people and objects around him.  Photos in this week’s gallery include playing with April and visiting with Alex and Clara…friends from my office.
We had an Oscar-watching party last weekend, which was great fun, and the past couple days have been warm and full of the promise of spring.  We saw and heard a large flock of sandhill cranes fly over our house yesterday. Spring is on the way!  Here’s a website with some nice quotes about spring.
Andrew is getting more and more adventurous with food.  He started eating Cheerios last weekend, and I think that was a major turning point in his experience with solid food.  He loves focusing intently to pick up each Cheerio and then to carefully try to maneuver the part of his hand holding the tasty morsel into his mouth.  His success rate is at about 1 in mouth out of 4 attempted.
Andrew’s solid foods don’t gag him when they’re not totally smooth this week, and he’s starting to enjoy mashed carrots, avocado, and little pieces of fruit and tofu.  The little guy is sitting next to me as I type, and I imagine he’s saying “Hi to all!”

Chemo treatments are staying the course

March 12: Mom had her second round of chemo on Tuesday, March 7.
She was scheduled to go to Mayo for a consultation with an oncologist there on March 3, but at the last minute, we found out that the insurance didn’t go through. So she’s currently going through an appeal process, and in the meantime, she’s proceeding with the clinical trial protocol.  At some point, she’ll go back up to Mayo to have a follow-up appointment with Dr. Farnell and hopefully also get a consult with an oncologist there.

Mom’s post-surgery chemo protocol calls for two weeks of chemo followed by one week off.  So she had treatments on Feb. 14 and 21, had the 28th off, and had another treatment on March 7.  She said that her main side effect is fatigue a couple days later.  She’s scheduled for treatment on March 14, 28, and April 4.  We thought she was supposed to have 15 rounds of post-surgery chemo, but according to the arm of the clinical trial that she’s assigned to, she’s just suppposed to have six treatments.  Not sure if that’s a good things since she’ll have less icky treatments or a bad thing because more treatments would be more effective.

Yesterday Mom and Andrew and I went shopping for the afternoon and then spent the evening togehter.  It was a great day.  Beautiful weather and fun in every respect.  Plus we got a great coat for mom and some cute clothes for Andrew!

Continue reading “Chemo treatments are staying the course”